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Wednesday, July 30, 2014

Nice evening with friends 07/18/14

Precious Ally

 
My bud Jill entertaining Nate and Brenden.   (Nate and Ally are Jill's little ones)

Brenden and Nate deciding if the water is to cold to get in.  It was cold. 

Brenden found a rock!  HAHA.    This was great to see since it is really the first time Brenden got in the creek.  They last time it took me quite some time to even get him to put his feet in.

Even Ally loves to play in the water.   Such a sweetie. 

Nate trying to find his rock.  He wasn't scared of the water.  He was even jumping off the bank on the other side.   It is a sweetie too.  Jill has awesome kids.  


Bubble time to top off the evening. 

I think all the kids were exhausted and tired by the time we were done.   This post goes to Jill for a wonderful evening.   Thank You!



People's Choice Festival 071214

Every year there is a People's Choice Festival in our town.   It's a nice place to go to and has something for everyone.  I know you heard that before but it really does have something for everyone.  This year we all got to go.  Brenden enjoyed himself of course since there were animals and he got to ride a horse.  Oh and I can't forget the bounce house plus the science area that is all hands on for kids.    They have many, I mean many different vendors in PA but when you go with a 5 year old, it's hard to really look at things.  It's okay, I didn't really need anything any ways except for Brenden to have a wonderful time.  So enjoy the pics...








wonderful time.  So enjoy the pics...

Monday, July 21, 2014

I would love for people to be more understanding.

I took this list from another site but most of these catorgories Brenden falls into.   For our family, friends and others that may see this, please read and try to understand.  Especially if you are going to be around Brenden.   And those that don't believe in Autism or just think it doesn't exsist, you have a right to your opinion but don't take it out on any child in this situation.

1. I am a child.
My autism is part of who I am, not all of who I am. Are you just one thing, or are you a
person with thoughts, feelings, preferences, ideas, talents, and dreams? Are you fat
(overweight), myopic (wear glasses) or klutzy (uncoordinated)? Those may be things that I
see first when I meet you, but you’re more than just that, aren’t you?
As an adult, you have control over how you define yourself. If you want to single out one 
characteristic, you can make that known. As a child, I am still unfolding. Neither you nor I 
yet know what I may be capable of. If you think of me as just one thing, you run the danger 
of setting up an expectation that may be too low. And if I get a sense that you don’t think I 
“can do it,” my natural response will be, why try? 

2. My senses are out of sync. 
This means that ordinary sights, sounds, smells, tastes, and touches that you may not even 
notice can be downright painful for me. My environment often feels hostile. I may appear 
withdrawn or belligerent or mean to you, but I’m just trying to defend myself. Here’s why a 
simple trip to the grocery store may be agonizing for me. 
My hearing may be hyperacute. Dozens of people jabber at once. The loudspeaker booms 
today’s special. Music blares from the sound system. Registers beep and cough, a coffee 
grinder chugs. The meat cutter screeches, babies wail, carts creak, the fluorescent lighting 
hums. My brain can’t filter all the input and I’m in overload! 
My sense of smell may be highly sensitive. The fish at the meat counter isn’t quite fresh, the 
guy standing next to us hasn’t showered today, the deli is handing out sausage samples, the 
baby in line ahead of us has a poopy diaper, they’re mopping up pickles on aisle three with 
ammonia. I feel like throwing up. 
And there’s so much hitting my eyes! The fluorescent light is not only too bright, it flickers. 
The space seems to be moving; the pulsating light bounces off everything and distorts what I 
am seeing. There are too many items for me to be able to focus (my brain may compensate 
with tunnel vision), swirling fans on the ceiling, so many bodies in constant motion. All this 
affects how I feel just standing there, and now I can’t even tell where my body is in space. 

3. Distinguish between won’t (I choose not to) and can’t (I am not able to). 
It isn’t that I don’t listen to instructions. It’s that I can’t understand you. When you call to me 
from across the room, I hear “*&^%$#@, Jordan. #$%^*&^%$&*.” Instead, come over to 
me, get my attention, and speak in plain words: “Jordan, put your book in your desk. It’s time 
to go to lunch.” This tells me what you want me to do and what is going to happen next. Now 
it’s much easier for me to comply.

4. I’m a concrete thinker. I interpret language literally. 
You confuse me by saying, “Hold your horses, cowboy!” when what you mean is, “Stop 
running.” Don’t tell me something is “a piece of cake” when there’s no dessert in sight and 
what you mean is, “This will be easy for you to do.” When you say, “It’s pouring cats and 
dogs,” I see pets coming out of a pitcher. Tell me, “It’s raining hard.” 
Idioms, puns, nuances, inferences, metaphors, allusions, and sarcasm are lost on me. 

5. Listen to all the ways I’m trying to communicate. 
It’s hard for me to tell you what I need when I don’t have a way to describe my feelings. I 
may be hungry, frustrated, frightened, or confused but right now I can’t find those words. Be alert for body language, withdrawal, agitation or other signs that tell you something is wrong. 
They’re there. 
Or, you may hear me compensate for not having all the words I need by sounding like a little 
professor or movie star, rattling off words or whole scripts well beyond my developmental 
age. I’ve memorized these messages from the world around me because I know I am 
expected to speak when spoken to. They may come from books, television, or the speech of 
other people. Grown-ups call it echolalia. I may not understand the context or the 
terminology I’m using. I just know that it gets me off the hook for coming up with a reply.

6. Picture this! I’m visually oriented. 
Show me how to do something rather than just telling me. And be prepared to show me many 
times. Lots of patient practice helps me learn. 
Visual supports help me move through my day. They relieve me of the stress of having to 
remember what comes next, make for smooth transition between activities, and help me 
manage my time and meet your expectations. 
I need to see something to learn it, because spoken words are like steam to me; they evaporate in an instant, before I have a chance to make sense of them. I don’t have instant-processing skills. Instructions and information presented to me visually can stay in front of me for as long as I need, and will be just the same when I come back to them later. Without this, I live the constant frustration of knowing that I’m missing big blocks of information and expectations, and am helpless to do anything about it.

7. Focus and build on what I can do rather than what I can’t do. 
Like any person, I can’t learn in an environment where I’m constantly made to feel that I’m 
not good enough and that I need fixing. I avoid trying anything new when I’m sure all I’ll get 
is criticism, no matter how “constructive” you think you’re being. Look for my strengths and 
you will find them. There is more than one right way to do most things. 

8. Help me with social interactions. 
It may look like I don’t want to play with the other kids on the playground, but it may be that 
I simply do not know how to start a conversation or join their play. Teach me how to play 
with others. Encourage other children to invite me to play along. I might be delighted to be 
included. 
I do best in structured play activities that have a clear beginning and end. I don’t know how 
to read facial expressions, body language, or the emotions of others. Coach me. If I laugh 
when Emily falls off the slide, it’s not that I think it’s funny. It’s that I don’t know what to 
say. Talk to me about Emily’s feelings and teach me to ask, “Are you okay?” 

9. Identify what triggers my meltdowns.
Meltdowns and blow-ups are more horrid for me than they are for you. They occur because one or more of my senses has gone into overload, or because I’ve been pushed past the limit

of my social abilities. If you can figure out why my meltdowns occur, they can be prevented.
Keep a log noting times, settings, people, and activities. A pattern may emerge.
Remember that everything I do is a form of communication. It tells you, when my words
cannot, how I’m reacting to what is happening around me. My behavior may have a physical
cause. Food allergies and sensitivities sleep problems and gastrointestinal problems can all
affect my behavior. Look for signs, because I may not be able to tell you about these things.

10. Love me unconditionally.
Throw away thoughts like, “If you would just—” and “Why can’t you—?” You didn’t fulfill
every expectation your parents had for you and you wouldn’t like being constantly reminded
of it. I didn’t choose to have autism. Remember that it’s happening to me, not you. Without
your support, my chances of growing up to be successful and independent are slim. With
your support and guidance, the possibilities are broader than you might think.
Three words we both need to live by: Patience. Patience. Patience.
View my autism as a different ability rather than a disability. Look past what you may see as
limitations and see my strengths. I may not be good at eye contact or conversation, but have
you noticed that I don’t lie, cheat at games, or pass judgment on other people?
I rely on you. All that I might become won’t happen without you as my foundation. Be my
advocate, be my guide, love me for who I am, and we’ll see how far I can go.




Another lazy Sunday....don't think so

We started our day with church as usual.   Brenden loves going to church and it has become such a habit for him (not a bad habit to have) so I always make a point to get him there regardless of how I am feeling.    It's a good thing he went because he got to wear their Superman dress that he loves.  
This one!

He looks so adorable in that.   After church he gets the usual play outside on their nice, very nice playground. All he wanted to do was bury his hands in the sand then bring them up through the big mound that I created on top of his hands.    Go figure.  He doesn't like the sand on his hands while he is playing in it but wants me to bury them?   Hmmmmmm?   He enjoys it so I just play along.   

I was finally able to persuade him to go have lunch and then to the pool.  I knew we would be back at church later in the evening but I couldn't tell him that so I used the pool to entice him to leave.   I know I bribed him but what parent doesn't when you still have fun things on the agenda.   

At the pool, well that might have not been the best idea but he had fun.  It was a short visit because I knew he was getting so tired.   He just started running in circles which brings me to why I wanted to write this post. 

I should have known there was to much on the schedule for him but he loves everything I had planned.   One great thing was he left me dump buckets of water on him at the pool.  He would dump some on me so I figured what a great way to get him a little more used to water being on him.  He giggled with delight as a threw the bucket of water at him and we just kept at it.  Until I could see the circles begin.   Just lazy circles over and over around the spray ground.   I knew it was time for the count down warnings so we could leave. He was happy to leave when it was time.   That's a sign he is too overstimulated to even enjoy it anymore. 

Little did he know we was going back to our church in a few hours.  It was ice cream and movie night.  Also of course play time at the playground.  What's not to love in a kids eye.  My intention was not to stay for the movie because I didn't think he would be able to but to my surprise he did great.   

I noticed while we were outside with ice cream and on the playground with many other kids, Brenden was over stimulated.   Talk about bad mom moment.  Thoughts of should we stay, should we go, am I pushing him to much reeled through my head.   I saw him just standing at the gate to enter the playground or running, jumping and flapping.  Brenden usually doesn't flap or it's so seldom.  This clued me into how over stimulated and tired he really was.  It was time to leave. 

Before I could even think about getting him ready to leave with time count down/warnings,  he realizes all the kids are going inside and hears them say for a movie.   Well of course he perks right up and says to me while pointing to himself  "Brenden movie!"    Oh what to do, what to do.  He's so tired and overstimulated that he is flapping which is not normal by any means for him.   I cave, the worst thing a parent can do, cave to their child wants and needs.    

You know what, the movie was great and Brenden did great.  The move was Robin Hood, the 1973 version.   Brenden wanted to go up front and sit/lay down with all the other kids, so I left him.  He was singing and dancing and having a blast with all the other kids.  I couldn't believe it.   Just a little earlier he was tired and over stimulated but the movie he loved and enjoyed with squeals of delight.   I was so proud of him.  He overcame the struggle of over stimulation.   

Now whether it was right or wrong over us having so much packed in the day, I don't know, probably but, Brenden succeeded again.   It makes me so happy to see Brenden power through his struggles.  And another good thing, no meltdowns all day!   I am still shocked to say the least. 


Saturday, July 19, 2014

Few warm days at the beginning of July

Forth of July 2014.

I got free tickets to our local baseball team, Spikes.   The tickets were boxed seats but I did not expect to sit there since our baseball stadium has a kids area.    I don't think I got to watch any of the game.  Not complaining though since I personally think baseball takes forever and is boring to watch.  So here's a couple snap shots of what the 4 hour game encompassed:




Best part was, only one real meltdown because of the over stimulation he feels sometimes in a 4 hour period of constant movement, sunlight and loud noises.   Another great day!

Every now and then Brenden likes to walk over to the water fountains near our Target store.  What's great about this, it's free and he gets to play in the water with out getting in.  I call this a win win.

Look at the joy on his face.  He love it.  Priceless!

Lazy Sunday on June 29th

Okay our days are never lazy.  I could only wish to get a lazy day.   Our day started off as usual with church.  To my surprise when I come back to pick up Brenden from his class this is what I find...
Yes Brenden in a Superman dress.   He certainly loves his super hero's.   Okay now I know some people will probably want to argue the whole 5 year old boy in a dress and I got one thing to say about that....He's 5 get over it people.

Usually Sunday afternoons we would go swimming but for some reason this day we didn't   Probably he was tired, I was tired so we didn't push it.  We did have some fun though and a small accomplishment.  Any accomplishment in this house is a big deal in my book.  

I took Brenden to Spring Creek.   It's a nice little park with a creek and a nice level of running water.   Brenden has not really liked open water.  He loves the pool but not open water.  Go figure.  I didn't expect much for him getting in the water but he did surprise me....
He only got his feet in but it took me a good 15-20 minutes to get him to do this.      Again it's an accomplishment, a huge accomplishment since things like this can be very hard for him.  

Since he did a great job and did actually get in the water I decided to give him a nice reward, Sweet Frog.   He loves this place.  I think he gets more toppings than ice cream.  That's okay, you gotta live a little.
Never a lazy day around here but it was a great day!

The Arboretum at Penn State 07/19/2014

Alan, Merleen and Brenden at the Arboretum.  I couldn't decide what pictures to post so I just posted them all.   

Just Beautiful and relaxing!   Enjoy!